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What's CDH?

Resources & Information about Congenital Diaphragmatic Hernia

April 19 is #CDHAwareness Day.

Congenital Diaphragmatic Hernia (CDH) is a congenital anomaly that occurs when a baby’s diaphragm fails to form fully, allowing abdominal organs to enter the chest cavity and prevent lung growth.

Approximately 1 in every 3000 babies is born with CDH, but these range from nearly undetectable to catastrophic. About 50% survive. The cause is still unknown, and research is woefully underfunded, but slowly gaining momentum finally.

Ronen Eliezer (z"l) was born in 2019 with a right-sided CDH, which we did not know about before he was born. Early scans showed that he had little to no diaphragmatic tissue on the right, which meant that parts of his intestines, his stomach, and his liver were sitting on top of his right lung, and pushing on his heart. His 39-day-life in the NICU at Children’s National Hospital was the most intense journey of my life thus far, and his loss still reverberates in epic ways.

 

Thanks for being here. May Ronen's memory be a blessing.

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